This is an exclusive report from Science News’, jointly organized with Retraction Watch, on a gene editing tragedy.
The tragedy involved two parents paying $860,000 to partially fund an unapproved clinical trial of 1 to save their daughter from a rare neurodevelopmental disease, the work being done by a superstar researcher in China working at a highly prestigious research hospital, the girl subsequently dying because the research behind the trial was shoddy, and the death of the girl being buried. The research behind this was subsequently published in Nature, but the human trial component was completely erased.
This might shape up to be one of the largest gene editing scandals for a while
Try this Wayback Machine link if you are paywalled
There’s also a brief follow-up article by Science News



That would be a sucky way to die, no doubt.